Friday, May 30, 2014

Bad Days Happen



I have bad days. I have good days, too. I embrace both. They keep me grounded. I do not suppress my feelings of hopelessness, despair and desperation. I drown in those feelings from time to time but never let them consume my spirit. The allow me to do one thing: remember that in the sorrow, I will find hope, faith and love.

It hasn't been easy since I had radiation. The month of April alone I traveled over 445 miles to doctors’ appointments. And yes, you read that right four hundred and forty-five miles in less than a month. The effects of radiation were worse than chemo and what’s life without a little drama mixed in from friends or family? It was tough. I finally started feeling better this past week. The radiation did wonders to my pelvic pain and I barely have any now.  The damage to my bowel and whatever nasty stomach issue I was having seemed to have worn off. I am still a little leery about the whole “feeling better thing” because it never usually lasts long. I am taking it easy for now. I haven’t been eating super healthy as I am not supposed to be eating too much fruits and veggies because of the bowel damage and since I haven’t been well enough to exercise I get pretty worn out when I try.

I have been having a lot of anxiety about my upcoming appointment with the breast surgeon. A huge part of me does not want to have a double mastectomy. They are my breasts. Breasts are not supposed to be hacked off of your body. I know it sounds selfish but I just don’t want to get surgery. I just don’t. I don’t want to have disfigured breasts. I don’t want to be in pain. I don’t want to feel awkward anymore. Then again, I don’t want cancer anymore either . . .

I still am not sure exactly what type of surgery I will have. I thought I was dead set on having a TRAM Flap reconstruction done, which uses your belly tissue and muscles for a more realistic feel, but now I don’t know if I would be eligible for that surgery. I have a rather large vertical keloid on my stomach from having SJ and don’t think the tissue is very usable. The silicone implants wouldn't bother me but I keep reading how painful the expanders they put in to stretch your tissue are. Pain terrifies me anymore. I am a big baby . . . never used to be though.

And trust me, this is no boob job or tummy tuck. If you’d like to see pictures of how great you think this surgery will turn out, please, Google double mastectomy reconstruction. It’s not pretty.

I’ll continue to have bad days, such is the life of a metastatic breast cancer patient, but I won’t let them conquer my love for life and my family. I have to forge through to have the best days of my life.



6 comments:

  1. Hi Kate,
    Yes, the roller coaster life... Your anxiety is completely understandable. This surgery is a huge deal and giving up our breasts is hard and scary too. Go ahead and have a good cry. Or two. Or three. As many as it takes. I still miss mine, but... we do what we must, right? Here's to many, many good days ahead for you. And to forging ahead. I like the sound of that. xx

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  2. I know baby girl I know. Bad days good days or just days xoxoxox Sending you a hug xoxo Thanks for being there for me this week when it looks like I needed to be there for YOU XO

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  3. I had my double mastectomy & reconstruction 2.5 years ago. The expanders are way less complicated & painful than come people make them out to be. Awkward, yes, but it's part of the process and not that bad at all! They aren't with you for very long and before you know it you'll have your implants and forget about this whole boob process. Hang in there! Sending lots of positive vibes to curb your anxiety.

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